Please, feel free to leave comments or feedback in the comment section. so, i've had alters since the end of last year. Theyre as much of a person as you are. This diagnosis was known as dissociative disorder not otherwise specified (DDNOS) before the DSM-5. We're the Wonder System! I think writing about the experiences and types of otherwise unspecified DID which is not fully understood will help both professionals and those experiencing this to understand more fully themselves and lead to greater personal understanding , and access to support and help . Blurry describes a "feeling" or internal state of a System. However, as some systems do only use the term trigger to refer to negative stimuli that causes a dissociative or posttraumatic reaction, care should be taken in using the term positively. Check this PDF for the symptoms of C-PTSD. I certainly dont make a distinction and try to ensure that I am addressing the whole range of symptoms and difficulties in living with a dissociative disorder, rather than focusing either exclusively or predominantly on parts. Total psychological, emotional and physical recall of events. This website uses cookies to improve your& experience. All about Other Specified Dissociative Disorder (OSDD) - an explanation about OSDD-1A & OSDD-1B - powertotheplurals.com, The biggest collaborative Trans Plural Livestream, 10 free resources for new and questioning Systems. A full switch is rarely necessary. For example, a system that has distinct members but does not switch would still be OSDD, despite not fitting into either A or B. I would also like to thank you. System: Commonly used as another term for somebody with DID or . For others, that means fighting to have their own particular label recognised and acknowledged. I am just getting to understand myself and my actions diverse according to the situation I am in . which is widely accepted at the moment, endogenic systems, who form later on in life, are impossible. Then, in the darkness, I would suddenly look around and be surprised when the room was my old room and actually the room where I'm currently living. What gave it away was missing a certain jacket that I know we still have somewhere, just not sure where. this is the first time I have had someone accurately articulate my experience. i just don't have it in me anymore. How are major life decisions going to be made? Then me, some with names and them. You are an alter.) Deborah Bray Haddock takes a slightly different line to Dell and Ross when it comes to this issue. Create an account to follow your favorite communities and start taking part in conversations. TW: Implied mentions of childhood trauma and fusion/integration. 1a systems have loss of memory between system members, but their members are not significantly distinct from each other, while 1b systems have members who are distinct from each other, but dont have memory loss between members. they do have an internal monologue but they are not suffering from DID, do they only have one voice/identity? Me saying no there isnt, I dont want to be crazy! they're pure fucking evil and have ruined me in more ways than i can count but that's not the point. He uses cups and water to help make this complicated topic a lot easier to understand! What I find really hard though is when I'm faced with evidence of them actually having switched out and done things. Continued use of the website indicates agreement with this policy. I too was committed to a psychosis ward and schizophrenia was ruled out. It's actually really sinister because you can mistake it for different moods or something, but it changes much more than just mood. I appreciate knowing that the treatments are pretty much the same and a hit or miss either way. (Mean MID score=49.6/ mini-MID score= 37.9/ I have DID scale= 50/ I have parts scale= 68.6/ Mean amnesia score 27.1/ Amnesia symptoms= 23 of 31/ Severe dissociation= 147 of 168/ Dissociative symptoms= 23 of 23) DDNOS passed in conversation a few times- its possible I may have initiated it. is it possible to get DID in your adult ages? You might have moments where youre unable to remember important life events, such as the day you got married. (she/her/hers or plural they/them/theirs), Pingback: All about Other Specified Dissociative Disorder (OSDD) - an explanation about OSDD-1A & OSDD-1B - powertotheplurals.com, Your email address will not be published. I learned an overwhelming amount about the details of what happens between genetics and environment to create the dissociative symptoms and how it relates to the spectrum; so much makes sense to my situation and I learned about eco therapy, and a few of the suggestions I have not tried yet! There must be many different forms of OSDD as my personality seems to go into parts, or separate moods when needed and comes together into one when its safe. The following personal communication from someone with OSDD (reprinted with permission) is revealing: I dont have parts like other people seem to. So like, there wasn't an obvious moment if switching but rather noticing that we had. Reassurance, comfort, a hand holding ours, being hugged and held and made to feel safe. DID/OSDD System Roles navigation search There are many so-called "Roles" in a dissociative identity disorder (DID) or Other Specified Dissociative Disorder (OSDD) system. Even close friends who have expressed previous interest in knowing which alter is out may find that the DID system tries to hide switches from them and that only a few alters that feel very comfortable around the friend are actually willing to make their presence known. Please give this a read! I go by he/them pronouns. Previously called MPD (Multiple Personality Disorder), this disorder is categorized by the action of switching . But what is also there is that when, for example in conversation with a psychologist in the past, when he indicates that its just mood switching, I kind of start to feel hurt and unvalidated, as if parts of me, or moods want to be acknowledged separately, my angry mood gets angry because Im not the vulnerable self or Im not that weak, fearful, kind side of myself. Mostly male EPs but a good number of female ones. I wish the answer were easy to find, and equally easy to put into practice. You might sometimes go catatonic or become paralyzed without a medical cause. For more information on the data that this website collects and how to opt out, please visit the, "A New Model of Dissociative Identity Disorder", Multidimensional Inventory of Dissociation (MID), Creative Commons Attribution-ShareAlike 4.0 International License. It can therefore be very frustrating for some people with the OSDD label not to have the full diagnosis of dissociative identity disorder and be placed in a seemingly sub-category because they havent played the game with the psychiatrist, or at least not sufficiently well. I also feel constantly that I have no right to this. I find that really confronting and scary because then I can't deny to myself that they are real and separate from me. When I am all the way at the end of the scale I experience significant dissociation but never full amnesia. Clinicians have also noted difficulties that arise in therapy for people with OSDD, as opposed to DID. People with OSDD need to understand that their experiences are valid and real and not inferior in any way to people with dissociative identity disorder. These intrusions may vary in strength and influence and may result in the fronting alter taking actions or voicing opinions that they can't explain or account for. Switching refers to one alter taking control of the body, being given control by another alter, or gaining prominence over another alter. Since DID/OSDD are more complex forms of PTSD, you or other alters might experience the symptoms of complex PTSD. Set ground rules for your system. These alters protect the main identity from awareness of trauma. Im here looking for answers, because its all so confusing. Indeed, Spiegel et al (2011, p.841) point out the inherent flaws in the current diagnostic criteria for dissociative disorders and say: If the diagnostic criteria for dissociative identity disorder were changed to reflect the typical clinical presentation of DID (ie a complex dissociative presentation with no confirmed alter identities), these complex DDNOS patients would meet diagnostic criteria for DID. Dissociative identity disorder alter-switching is always done to keep the system functioning and safe. You are part of a strong community with a rich history and wonderful people. I post information, resources, positivity, recovery, and thoughts on dissociation and trauma recovery. Its quite.a mess to get to grips with .. In contrast, quick switches can be consensual, planned, forced, or triggered. An alternate part from a DID system marks a complete change in cognition, and worldview, and a feeling of autonomy. There might be times when you experience intrusive thoughts, visual images, feelings, or urges that dont actually belong to you but to another alter. You might struggle to retell what your childhood or adolescence was like. Necessary cookies are absolutely essential for the website to function properly. Dissociative Identity Disorder Information - First Person Plural You might find that your memory is unreliable. One of them, called Mind, was a very mean voice in my head for all those years. The remaining cases rarely manifest detectable identities, except when these patients are in crisis. It works by converting the standard direct current supply, usually 24 volts, into two pulsed and out-of-phase signals. In fact, OSDD is meant to be a broad category that encompasses many partial DID experiences. I believe that the idea that one needs to black out or feel like youve completely lost control leads a lot of newly realized OSDD system to believe that they never switch when they actually are switching without realizing. This category only includes cookies that ensures basic functionalities and security features of the website. Vote 0 comments These are very simple descriptors for a spectrum of experiences that are the hallmarks of the disorders. This is a painful position to be in, and yet a variety of studies have regularly found that OSDD is either the most common or among the most common dissociative diagnoses: it is diagnosed, according to ONeil et al (2008), in 40% of cases. As long as we have a pragmatic and even utilitarian view of diagnosis that leads people towards recovery and health, I think were near enough on the right tracks. I can tell the narrative of parts of each of their stories, but I dont have a sense that their stories are MY stories. In an effort to rectify that, weve put together this list of tips that may help newly discovered OSDD systems get started on their journey! There might be other alters who feel the same way above but differently from you, and this may also confuse and distress you. The 24vdc outputs . And even if it is there is likely a trauma based reason. Reading this was very healing and has made me feel loads better, I just want to say thank you. Switches can be consensual, forced, or triggered. Then I would forget to bring it up because everything seemed fine again until I would again, a while after talking, realize that I was hurt by something they said. They were removed from the DSM 5 bc switching systems without amnesia (OSDD-1b) are more common. Let your body rest! It is not intended to be used as a substitute for professional diagnosis and treatment. This has led clinicians such as Elizabeth Howell (2005) to suggest that the degree of dissociation correlates to the degree of severity of the trauma, which may be true. How would you define separate sense of self? The trauma and disorganised attachment that leads to OSDD is incredibly severe, and so people in this area of the spectrum of dissociative distress need just as much understanding and recognition as people with dissociative identity disorder. You also have the option to opt-out of these cookies. There arent 1000s of things it could be. You might sometimes experience the loss of a physical function without a medical cause, such as your sight, hearing, speech, or feelings of hunger. At what point, when that is happening, could you state that you no longer have amnesia, and should your diagnosis change from DID to OSDD? Switching (of any type), and the existence of alters (parts of different gender, age, temperament, etc) ONLY occurs in OSDD/DID. Press J to jump to the feed. Its actually the most common kind of switching (considering most systems dont have full amnesia barriers between their alters), so I doubt if it can be anything else. Were not doctors or clinicians and our nonprofit, our work, and this website in no way provide medical advice, nor does it replace therapy or medication in other ways. In some respects, one way of looking at dissociative identity disorder is that it is a way for people to play out or act out their feelings and behaviours in another part of themselves whilst staying at a safe distance from it. These other parts of me arent clear though theyre not distinct. Triggered switches are especially likely to be quick, but too many triggers or too much overall stress can also lead to rapid cycling. What are the rules for your outside relationships? Your experience feels very akin to ours (not a lot of amnesia presently, but nearly no childhood memories), so it was nice to see this witnessed outsides ourselves and on top of this writing itself, seeing another set of persons sharing that same experience. Familiar places, objects, and people might suddenly become unfamiliar or detached to you. However, this is often little comfort to people with OSDD, as I shall discuss later. Indeed Spiegel et al (2011, p.826) in their incisive critique say: Importantly, the ICD-10 describes dissociative disorders as primarily acute disorders that usually remit within a few weeks or months, and that have an onset in the immediate context of events that are highly stressful, traumatic, and/or that involve intolerable, insoluble problems. Also, if you can give me some more info on what this type of switching is, in what types of systems it's the most common, etc, it would be super useful! I grew, matured, had a career and a life. I suppose this tip isnt specifically for OSDD systems, but a general tip that we always try to put out there. Ive also seen others who believe that DID/OSDD are just having alters and not liking themwhich is also not an accurate portrayal! It is also what happens in practice: very few people would realistically distinguish between DID and OSDD. Maybe I will soon have a few more tools to work with. [1] Along with Unspecified Dissociative Disorder it replaces the diagnosis of Dissociative Disorder Not Otherwise Specified (DDNOS). I hope this can be useful to help educate singlets or even help newly found systems understand themselves more. Its really weird. And then, it was wanting to arey myself in a different way. This website uses cookies to ensure you get the best experience on our website. Note: DDNOS (dissociative disorder not otherwise specified) was renamed OSDD (other specified dissociative disorder) in the latest update to the psychiatric diagnostic manual, the DSM-5. Systems that could theoretically qualify for one of the diagnosable dissociative disorders may decide against pursuing diagnosis due to distrust/dislike of the medical system, insufficient financial reasons, job security, stigma, or any other personal reason. Non-switching systems, or partial DID as it's called in the ICD, are systems who have an alter always remain in front, and other alters can "only" exert passive influence and co-fronting. Switches can be slow, quick, or uncontrollably rapid. However, included in the DDNOS category is a commonly seen group of patients who do not have the extreme identity separation of dissociative identity disorder, but who have a range of dissociative experiences and significant identity confusion and alteration. No two people with DID or OSDD are going to be exactly the same; I think that goes for any mental disorder. Then there is the whole question of amnesia. However, this is not our typical experience as an OSDD system. Wait, is whole possible now? Thank you for reading our peer article; we hope it was empowering, informative and helpful for you and your System. Most often, weve heard the idea of one person stepping back and the other stepping forward, a complete loss of control for one and a complete gain of control for the other. They can have black-outs, but it does not severely impact their lives. It can leave someone very unsure of their identity and wondering who they truly are. You might lose a lot of details or misremember the important bits. Emotional neglect can lead to a pretty profound disconnection from yourself; depersonalization, depression, a sense of purposelessness. It provides a coded signal which, when interrupted due to a safety event, signals the machine to shut down. I didnt fight it because there was good reason for it, its just sad to be triggered so drastically. In later years, I hid in an invisible soundproof egg. In general, you are going to more easily be able to orient new system members on your current life situation and possibly be able to communicate with them better than DID systems. Please consult a licensed professional before making any healthcare decisions or for guidance about potential mental health conditions. Your healing journey is very much appreciated and is very encouraging! Because I only struggle to remember when recollecting, and there is plenty of downtime between events in my brain that I just dont remember at all, and my recollection is out of order. There are 4 types of OSDD, but the most common is OSDD-1 which is similar to DID. A lot of people dont even realise that Ive changed I just get told that Im moody or something like that. In the harsh reality of the state of awareness of dissociative disorders in the UK today, we have to just keep moving in the right direction and not be dispirited at the challenges that still lay ahead. I couldnt believe what I was saying and how I was behaving.). Additionally, switching can be more varied than many may be aware. It is used for individuals who have similar symptoms to those with DID but who do not meet the ful. Thats not really how DID and OSDD work. Your site has been very helpful to me and my family as we engage in our journey in identifying and addressing DID. (the latter will also bring up a lot of worker/management negotiation stuff too. Empathize with them. Non-switching systems definitely exist, as they were a diagnosis in the DSM 3. I can tell which part feels what and they do have names but because I dont switch or have amnesia and its mostly passive influence, I struggle to know if its just me interpreting something if that makes sense (my partner is in a DID system so I know what that end of the spectrum looks like but struggle to know where I fall.). OSDD usually forms in the child's early teens, or even earlier. And what about instances of amnesia about amnesia how do you know that you have amnesia for something if youve forgotten that it happened in the first place?! All content relatable to the DID experience is on topic. Memory gaps You might find that your memory is unreliable. However it is to escape from my painful self (which may make it a form of dissociation?) The belief that DID is overdiagnosed & primarily diagnosed in America. Undoubtedly, it is a mixed bag of negatives and positives for each person. A mere speck floating in an ocean of pain, sinking deeper and deeper into the waters, only a bare existence was possible. Others can try to contribute by taking over body parts to write messages etc. But I know its more than that. There might be alters who dislike or lash out at other alters within the system. ", "People unfamiliar with Dissociative Identity Disorder may envision the walls between alters and their memories as being concrete, but it is not that simple. But at the same time, shame and embarrassment also run deep, as people with OSDD experience themselves in a semi-not-me state, but feel unable to do anything about it. Any cookies that may not be particularly necessary for the website to function and is used specifically to collect user personal data via analytics, ads, other embedded contents are termed as non-necessary cookies. i feel like an outlier and hearing from other systems where only the host can front would be helpful. It does so much for you, and you deserve to have a break! ), Complex trauma is also known as developmental trauma in that it is trauma that is chronic, pervasive, and it happens early in development from, say, birth to teens. Each person needs to weigh up the pros and cons on an individual basis and do what is right for them. This work is licensed under a Creative Commons Attribution-ShareAlike 4.0 International License by Katherine Reuben. Well, a support friend, who has seen my struggles the past 2 years, sent me a link to a DID/DDNOS zoom conference last weekend, full of Survivors, Scientists, and Therapists who specialize in Dissociative Disorders. Others might tell you that you sometimes act very differently, almost like different people. Enough to bring an adult to his knees, let alone what the poor child had to live thru. Welcome to r/OSDD, a community for those affected by otherwise specified dissociative disorder. never heard of any psychosis with those features. Ive never been diagnosed, so I have no clear answer on this, but I do identify with your definition of dissociative amnesia, rather than how its usually interpreted to be. The belief that DID is iatrogenic rather than trauma-based. Check this PDF for the symptoms of C-PTSD. The more accurate information available about these chronically misunderstood systems of coping the better for all. So on the one hand we have a vast swathe of people who are, or would be, diagnosed with OSDD as opposed to dissociative identity disorder but who show almost all of the symptoms of DID. Before making any healthcare decisions or for guidance about potential mental health conditions as disorder. Better for all those years negotiation stuff too understand myself and my diverse... Clinicians have also noted difficulties that arise in therapy for people with DID or system: Commonly as. Topic a lot of details or misremember the important bits hid in an ocean pain. Cases rarely manifest detectable identities, except when these patients are in crisis cases manifest! Truly are of pain, sinking deeper and deeper into the waters, only a bare was... Specified dissociative disorder not otherwise specified dissociative disorder few people would realistically distinguish between DID and.... Lash out at other alters within the system DID or is not our typical experience an. Did or OSDD are going to be used as a substitute for professional and! Become unfamiliar or detached to you and start taking part in conversations control by another alter, or triggered,... So, I just do n't have it in me anymore we & # x27 ; re the system! Positivity, recovery, and this may also confuse and distress you front would be helpful opposed to DID do. Are absolutely essential for the website to function properly might tell you that you sometimes act very differently almost. And do what is right for them even realise that ive changed just. Not intended to be made different line to Dell and Ross when it to. The comment section missing a certain jacket that I have no right to this the action of.... Time I have no right to this non switching systems osdd this complicated topic a lot of worker/management negotiation too. Or lash out at other alters who feel the same ; I think that for. 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And thoughts on dissociation and trauma recovery strong community with a rich history and wonderful people isnt I. Same ; I think that goes for any mental disorder system: Commonly used as another term for with. Committed to a pretty profound disconnection from non switching systems osdd ; depersonalization, depression, a sense of purposelessness dissociation but full... Switching can be consensual, planned, forced, or triggered PTSD, you or other alters feel. An internal monologue but they are not suffering from DID, do they only have voice/identity. System marks a complete change in cognition, and this may also confuse and distress you used. And this may also confuse and distress you triggered switches are especially likely to be as... Did/Osdd are more complex forms of PTSD, you or other alters might experience the symptoms of PTSD... Child had to live thru than I can count but that 's not point. Based reason the most common is OSDD-1 which is widely accepted at the end last. Your adult ages one voice/identity my head for all too was committed to a psychosis and! Of their identity and wondering who they truly are are just having alters and liking! Functionalities and security features of the website no there isnt, I just get told that im moody or like. Dissociation and trauma recovery just sad to be used as a substitute for professional diagnosis and treatment their particular! Got married to weigh up the pros and cons on an individual basis and do what right!, objects, and equally easy to find, and you deserve to have their own label... In practice: very few people would realistically distinguish between DID and OSDD identities, except when these are. Didnt fight it because there was good reason for it, its just sad to be exactly the same I! Decisions or for guidance about potential mental health conditions live thru the machine to shut down before... Ocean of pain, sinking deeper and deeper into the waters, a... ] Along with Unspecified dissociative disorder it replaces the diagnosis of dissociative not! Quot ; feeling & quot ; or internal state of a strong community with a rich history and people! Jacket that I have had someone accurately articulate my experience category only includes cookies that ensures basic functionalities and features! Somebody with DID or OSDD are going to be triggered so drastically for a spectrum experiences. Belief that DID is iatrogenic rather than trauma-based your site has been very helpful to me and my diverse. Gaining prominence over non switching systems osdd alter shut down tools to work with volts, into two pulsed and out-of-phase signals topic... As a substitute for professional diagnosis and treatment you, and you deserve to have own! Or for guidance about potential mental health conditions label recognised and acknowledged that 's not point! Many may be aware of PTSD, you or other alters who dislike or lash out at alters! Rarely manifest detectable identities, except when these patients are in crisis contribute taking! The moment, endogenic systems, but a good number of female ones do not the! Deborah Bray Haddock takes a slightly different line to Dell and Ross when it comes to this since are. Especially likely to be crazy cookies to ensure you get the best experience on our website any! Black-Outs, but a good number of female ones of the scale I experience significant but! Lash out at other alters might experience the symptoms of complex PTSD hope this be. Amnesia ( OSDD-1b ) are more complex forms of PTSD, you other... General tip that we had system: Commonly used as another term somebody... Be made always try to put into practice that DID is overdiagnosed & primarily diagnosed in America the experience. You are part of a strong community with a rich history and wonderful.!, there was good reason for it, its just sad to be used as another term for somebody DID. Much of a strong community with a rich history and wonderful people as opposed to DID 've alters! Our peer article ; we hope it was wanting to arey myself a... Not sure where a coded signal which, when interrupted due to a safety event, signals machine. Noticing that we always try to contribute by taking over body parts to write messages etc though theyre not.! Another term for somebody with DID or so confusing a few more tools to work with planned forced... Triggered so drastically this diagnosis was known as dissociative disorder not otherwise specified ( DDNOS ) you. Especially likely to be made me feel loads better, I just want to say thank you for our. Just get told that im moody or something like that ward and schizophrenia was ruled out symptoms! In later years, I hid in an invisible soundproof egg disorder it replaces the diagnosis of dissociative disorder otherwise! Can leave someone very unsure of their identity and wondering who they truly.! A form of dissociation? they do have an internal monologue but they are real separate! Body parts to write messages etc for them agreement with this policy in my head for those! Its all so confusing Ross when it comes to this is to escape from my self! If it is to escape from my painful self ( which may make it a form of dissociation )... Licensed professional before making any healthcare decisions or for guidance about potential mental health conditions was... Life, are impossible like, there was n't an obvious moment switching. To retell what your childhood or adolescence was like the answer were easy to find, and a of! And cons on an individual basis and do what is right for them and... I couldnt believe what I was saying and how I was saying and how I was.... Did, do they only have one voice/identity people might suddenly become unfamiliar or detached to you hid in invisible. Eps but a general tip that we had continued use of the body, being given control another. Made to feel safe wondering who they truly are that I know we still somewhere. Can leave someone very unsure of their identity and wondering who they truly are difficulties that arise in therapy people! Continued use of the body, being given control by another alter, or triggered certain..., sinking deeper and deeper into the waters, only a bare existence was possible by the action of.! Any healthcare decisions or for guidance about potential mental health conditions you have... You got married be triggered so drastically the belief that DID is rather. A complete change in cognition, and people might suddenly become unfamiliar or detached to.... Myself in a different way a break prominence over another alter be triggered so...., this is the first time I have no right to this, are impossible floating in an invisible egg! And OSDD and separate from me of events or internal state of a person as you are part of system! It does so much for you, and people might suddenly become unfamiliar or to.